THE NEPHROTIC SYNDROME FOUNDATION: WE HOPE

by The Nephrotic Syndrome Foundation

Johnna B

The Nephrotic Syndrome Foundation is near and dear to our hearts because they have been a great source of support, encouragement, and hope through our family’s journey with Minimal Change Disease Nephrotic Syndrome.

One of the greatest blessings they give to kids fighting CNS, is through their Backpacks of Hope program. Each one is hand-packed with personal notes, gifts to delight the heart of the child (and even something for their siblings), offer encouragement, information, and items to help cope as they battle through.

We’d like to help NSF continue to provide these backpacks to the kids who need them. Will you join us in our goal to help provide 1-2 backpacks for other kids battling Childhood Nephrotic Syndrome?

Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families and the ongoing search for a cure.

Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.