THE NEPHROTIC SYNDROME FOUNDATION: WE HOPE

by The Nephrotic Syndrome Foundation

Jenny Tapia

hi, my daughter Gabie was diagnosed with Nephrotic syndrome Minimal Change Disease at age 4 now 8. I couldn't be more happy to have found the NSF. They have really been a great support and we are really thankful for this great team. another great thing we are so grateful for was the backpack of hope that brought so much happiness and joy to my daughter. The detail notes the great gift inside of them its such a great blessing.. this is why I would like you to help Gabie raise some funds so we can can bring a big smile of happiness to an NS warrior. Lets let them know that together we are one, we are strong and were all in this together <3

Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families and the ongoing search for a cure.

Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.