THE NEPHROTIC SYNDROME FOUNDATION: WE HOPE

by The Nephrotic Syndrome Foundation

Khang Nguyen

As some of you may know, our son Cameron was diagnosed with IgA Nephropathy (also known as Berger's disease) several years ago. Since then he's been through a lot but has stayed strong through it all. He is full of energy and lives life with the biggest smile. He is respectful, considerate and one of the best human beings I know. We could not be more proud of him. As parents, our jobs are to keep our children safe from harm and to give them the best lives possible. Along the way, life throws curve balls and we do what we must for our children. But we can't always do it alone. We've recently discovered an extended family in our journey down this road with Cameron in The Nephrotic Syndrome Foundation (NSF). This is a non-profit organization established to provide support for our families, educate and support efforts for a cure. Your donations towards these efforts is greatly appreciated, more than you'll ever know. Thank you in advance for your generosity.

Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families and the ongoing search for a cure.

Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.