THE NEPHROTIC SYNDROME FOUNDATION: WE HOPE

by The Nephrotic Syndrome Foundation

Valerie Contreras

Two years ago my daughter, Serenity, and was diagnosed with nephrotic syndrome. At the time we had no idea how that would change her life. From hospital stays to constant medications to diet changes she has shown just how strong of a little human she is. So when I found The Nephrotic Syndrome Foundation I wanted to do what I could to help bring more awareness to this cause.

Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families and the ongoing search for a cure.

Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids, cancer, and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.